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Table 1 Descriptors of data to be extracted from included studies

From: Communication strategies for rare cancers: a systematic review protocol

Author Year of publication Country Study design Cancer type investigated (if applicable) Communication strategy Intent of communication strategy Intended audience Population size (if applicable) Findings
Quantitative Qualitative
Paper A authors xxxx UK [Type] [Rare cancer type] Leaflet in a General Practice reception General Information to increase awareness about [rare cancer type] Patient, public X X number of people said they would pick up the leaflet, Y number said they found the information useful There was an increase in undiagnosed patients raising concerns about [rare cancer]; however, the content of leaflet was no more informative than that provided by online
Paper B authors xxxx USA [Type] [Rare cancer type] Online discussion forum Discussion between patients suffering from [a rare cancer] and experts in the field Patient, healthcare professionals, research specialists X X people viewed the forum, Y people commented, X% were patients and X% were healthcare professionals Helped understanding, allowed communication between affected individuals
Paper C authors xxxx Australia [Type] [Rare cancer type] Text Test result of a novel pharmaceutical agent Patient X X number of people were involved in the study Patients understood implications of the result
  1. An example table of data that will be extracted from each study. If several studies examine homogenous interventions, these results will be included and a meta-analysis will be performed